Support Ashlyn Impton
On December 9, 2008, we had a beautiful little girl and we named her Ashlyn. She was more than my husband and I could ever imagine. She had 10 little fingers, 10 little toes, and the cutest little button nose. She was always happy and content. An unlike most new babies, she even slept through the night most of the time. She was perfect, a happy and healthy baby girl.
As the months went by, I started feeling like something was wrong. I remember feeling that Ashlyn was not developing like a three-month-old should be. Soon after, our lives were turned upside down. Our perfectly healthy little girl had her first series of seizures. The fairy tale life we had been living had become our worst nightmare. Over the next few months, Ashlyn continued to have multiple seizures and developed infantile spasms, a rare seizure disorder.
After seeing a genetics specialist, we learned that Ashlyn was born with a very rare genetic disorder called CDKL5. CDKL5 deficiency disorder is characterized by seizures that begin in infancy, followed by significant delays in many aspects of development. The types of seizures change with age, and they usually follow a predictable pattern. Seizures occur daily in most affected individuals, and they are resistant to treatment.
After Ashlyn was finally diagnosed with CDKL5, it was still a battle trying to keep her seizures under control. She would have 1 to 30+ seizures a day, consisting of every seizure type there is. The seizures would leave her drained and inactive most days. For months, she was lethargic and would sleep most of the day because the seizures had taken a toll on her little body. We tried multiple medications, only for them to fail after a short period of time. The ketogenic diet, a controlled protein diet that has been used since the 1920’s to treat epilepsy, which is high in fat and low in carbohydrates. Both of these treatments only worked for a short period of time.
We have recently discovered Hyperbaric Oxygen Therapy (HBOT) and Conductive Education (CE) and believe these services could be crucial for Ashlyn’s healing and development. In many cases HBOT and CE have improved the client’s fine and gross motor skills, speech, thinking (cognition), physical healing, seizure reduction, etc. We’ve recently learned that there is a facility here in Northwest Ohio that we can go to called Sara’s Garden. Sara’s Garden, a non-profit center that offers both HBOT and CE services, specializes in working with clients with disabilities such as CDKL5.
Unfortunately, in the United States insurance companies do not recognize these services as being therapeutic for the treatment of CDKL5 and therefore will not cover the cost for treatments. That is why I could really use your help. We would like to take Ashlyn to Sara’s Garden for treatments this summer. HBOT for Ashlyn is only $100 per treatment and Conductive Education is only $35 per hour at Sara’s Garden. However, since our plan is for her to receive at least 40 HBOT treatments and 80 hours of Conductive Education that cost adds up quickly.
If you could assist us with the cost (or even just part of the cost) of a single $100 HBOT treatment or $35 hour of Conductive Education it would help reduce our overall expenses greatly. 100% of the funds received go into an account in Ashlyn’s name and will be used for her treatments. Any contribution made would be considered a tax-deductible donation as Sara’s Garden is a 501(c)(3) non-profit facility. Checks can be made out to Sara’s Garden with Ashlyn’s name on a sheet of paper accompanying the check. Please do NOT write her name directly on the check. You can also donate online by clicking on the DONATE NOW button below.
Thank you so much for considering supporting Ashlyn and her treatments at Sara’s Garden!
Christopher & Amber Impton
Sara’s Garden is a 501(c)(3) organization. Your charitable contribution is tax deductible under 501(c)(3) of the IRS code, to the extent allowed by law. A receipt will be sent to you after your pledge has been received to use for tax purposes.