Support Boe Bohner
Hello, my name is Boe Bohner!
I am a fun loving 2.5, going on 3, year old. I was born with a primary condition called Global Developmental Delay. I also have 2 secondary conditions called Hypotonia (low muscle tone) and ataxic movements (tremor like). My red blood cells are burr shaped with a quarter of them being abnormally affected. Due to my hypotonia throughout my body, I am unable to stand or walk unassisted. My walker or mom and dad aid me in my everyday physical needs.
My communication is also limited to a few single words and a couple sign language words. Also because of low oral muscle tone, I tend to drool. At nine months old, I started in-home physical therapy one time a month, this led to aquatic therapy one time a week. At 15 months, I continued the physical therapy at home once a week and started another outpatient physical therapy, occupational therapy, and speech therapy at a local hospital. In the past few months, I have started hippo therapy two days a week and physical therapy two days a week. I wear A.F.O.s (leg braces) to help strengthen my leg muscles. In the fall, I will start with a whole new crew of therapist due to starting preschool. Currently, I see three different doctors, a physiatrist, pediatrician, and a geneticist on a rotation of every 3 months so they can keep a close eye on my condition.
I live at home with my mom, dad, sister, brother, and aunt. I am a very happy toddler that loves to play ball and hang out with my siblings’ friends. I enjoy going to watch baseball, football, and basketball at our local park. While I am there, I get to see and meet friends and eat snacks from the concession stand. I also like listening to music and dancing!
My parents recently saw a video of a little girl who received HBOT (Hyperbaric Oxygen Therapy) and experienced great improvements from the treatments. I am lucky to have a facility so close to where I live that offers these treatments for people like me. Unfortunately, in the United States insurance will often not reimburse for HBOT treatment for my conditions, even though there is an acknowledgment that it may be therapeutic. That is why our family could really use your help. HBOT at Sara’s Garden is only $100.00 per treatment for my conditions (as opposed to $1,500-2,500 per treatment at a hospital.) However, since my families’ plan is for me to receive at least 40 HBOT treatments, that cost adds up quickly.
If you could assist my family with the cost (or even just part of the cost) of a single $100 HBOT treatment, it would help reduce our overall expenses greatly. 100% of the funds received go into an account in my name and will be used for my treatments. Any contribution made would be considered a tax-deductible donation as Sara’s Garden is a 501(c)(3) non-profit facility. Checks can be made out to Sara’s Garden with “Boe Bohner” written on a sheet of paper accompanying the check. Please do NOT write my name directly on the check. You can also donate online via credit card by clicking the “donate now” button below.
Thank you for considering to help my family and me!
Sara’s Garden is a 501(c)(3) organization. Your charitable contribution is tax deductible under 501(c)(3) of the IRS code, to the extent allowed by law. A receipt will be sent to you after your pledge has been received to use for tax purposes.